We are a nonprofit organization committed to finding a cure for Dent disease, a rare genetic kidney disorder, through the life-changing power of collaboration.
Learn about Dent Disease
Dent disease is a rare genetic kidney disorder that affects males almost exclusively. It is characterized by the spillage of small proteins in the urine, increased levels of calcium in the urine, kidney calcifications (nephrocalcinosis), recurrent episodes of kidney stones (nephrolithiasis), and chronic kidney disease.
Join the Community
Composed of mothers, fathers, grandparents, patients, sisters, brothers, and friends, we’re people just like you who have—or love someone with—Dent disease. Join our community, as we support each other in caring and finding a cure.
Join the Data Collection Program
We partnered with Rare-X, the largest data collection and federated data sharing and analysis platform in rare disease, to support accelerated Dent disease research for a cure. By sharing your unidentified medical data with Rare-X, collaborations between patients, researchers, and biopharma partners can lead to potential successes in the future of kidney care and Dent disease management and, ultimately, a cure.
Your donations directly support our work. Our board is 100 percent volunteer and three percent of our operating budget goes to expenses, so the maximum amount possible can be allocated for patient support and research.