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**MEETING MAY BE DELAYED DUE TO LOW PARTICIPATION.
DO NOT BUY NON-REFUNDABLE TRAVEL UNTIL CONFIRMED.** Please RSVP here for an accurate guest count.
New!! Dent Disease Research Database
This centralized, fully searchable database features almost 300 curated summaries synthesized directly from peer-reviewed PubMed literature. Designed for clinicians, researchers, patients, and families alike, our portal bridges the gap between complex science and accessible insights.
A specialized, open-access database that catalogs over 520 genetic variants causing
Dent Disease Type 1. It bridges the gap between global clinical research and patient care by providing a central repository for medical experts studying this rare kidney disorder.
our mission.
Through the life-changing power of collaboration, our goal as a nonprofit patient advocacy organization is to educate and connect our community in order to find a cure for Dent disease, a rare genetic kidney disorder.
making a Dent.
Advocacy efforts of the Dent Disease Foundation
(Click on event for more information. Click on [month] to switch to [schedule] view.)
the faces of Dent.
the DENTed blog.
Doctors can't cure Dent disease if they can't find it.
First, make sure your doctor has enrolled you in a
REDCap registry.
In addition, join RARE-X to input your data yourself.
Data = cures!!
our partners.
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